tag:blogger.com,1999:blog-8533911831400192848.post6715915706968046312..comments2023-10-20T06:48:05.682-04:00Comments on Here's Your Gold Watch - Rheutired: Blogging For HealthAnethttp://www.blogger.com/profile/02831501899415936152noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-8533911831400192848.post-68842268339091836592018-05-23T22:19:34.131-04:002018-05-23T22:19:34.131-04:00Hi good idea to find a method to write about hidin...Hi good idea to find a method to write about hiding chronic pain because no one believes me because I look so healthy, lol.gabeehttps://www.blogger.com/profile/05054088017419918494noreply@blogger.comtag:blogger.com,1999:blog-8533911831400192848.post-90203065181191597172013-02-01T16:49:05.386-05:002013-02-01T16:49:05.386-05:00I look forward to seeing further research by your ...I look forward to seeing further research by your group. I have read so many illness and health blogs over the years that starting one seemed logical.<br />The benefits of blogging came as a surprise to me. It sounds as though you asked the right questions and analyzed well to come to conclusions that resonate like yours do. <br />I tweeted the link on Jan 5 and it got some RTs and favourites. bacigalupe found it interestingAnethttps://www.blogger.com/profile/02831501899415936152noreply@blogger.comtag:blogger.com,1999:blog-8533911831400192848.post-28274598079116986602013-02-01T16:23:02.706-05:002013-02-01T16:23:02.706-05:00Thanks so much for mentioning our paper "Comm...Thanks so much for mentioning our paper "Communicating the Experience of Chronic Pain and Illness through Blogging". One of the wonderful outcomes of the paper has been the positive feedback from so many illness bloggers! We hope to continue this area of research in the future.<br />Pamela Resslerhttp://publichealth.tufts.edu/Academics/MS-Pain-Research-Education-and-Policynoreply@blogger.comtag:blogger.com,1999:blog-8533911831400192848.post-56089667031393090182013-01-30T01:59:17.622-05:002013-01-30T01:59:17.622-05:00Some people have written novels using Twitter. I&#...Some people have written novels using Twitter. I'm sure I read about it in Twitter's early days. Check it out. :)Janehttps://www.blogger.com/profile/04880509595317100208noreply@blogger.comtag:blogger.com,1999:blog-8533911831400192848.post-13965502908642742642013-01-27T23:02:29.195-05:002013-01-27T23:02:29.195-05:00I'm glad that the blogging seems to be helping...I'm glad that the blogging seems to be helping you. Maybe you will end up as the author of a very illuminating book that will help many others. <br />I plan to keep on blogging. Maybe if I can build the confidence I can try to write a novel - I just fear that I don't have enough words for that. Twitter at 140 characters is very seductive and more my styleAnethttps://www.blogger.com/profile/02831501899415936152noreply@blogger.comtag:blogger.com,1999:blog-8533911831400192848.post-49816100499564554292013-01-27T04:24:32.607-05:002013-01-27T04:24:32.607-05:00I think you would embrace Stephen King's writi...I think you would embrace Stephen King's writing advice. He's all about telling the truth. In fact, I just finished reading a writing book (I don't know that I should mention the writer), but she broke one of King's cardinal rules about describing someone's wardrobe using words like 'chartreuse'. I love art, but I'm still not sure what colour that is without googling it. Stripping it down to the bare bones is sometimes a great attribute. I skimmed most of the book...<br /><br />I think I need to write more. I just have to get out of this everyday is an emergency psychiatric crash cart existence. I don't mean that to sound harsh or uncaring because I care so deeply, but I feel like I'm shutting down most of the time to stop being overwhelmed by the wreckage of my own past. I suppose that means I should write about it.<br /><br />In the meantime, chipping away at the blogging feels good, and I feel like my story is starting to bubble to the surface. I have a feeling it will spill out when it's ready, whether I want it to or not!<br /><br />Take care,<br />JaneJanehttps://www.blogger.com/profile/04880509595317100208noreply@blogger.comtag:blogger.com,1999:blog-8533911831400192848.post-25264722125394021102013-01-26T22:23:48.463-05:002013-01-26T22:23:48.463-05:00Thanks Jane
You always have such helpful comments....Thanks Jane<br />You always have such helpful comments. This may be a good day to get a few more books of advice. Deep down I could always see myself writing since I'm a reader, but never tried because I am such a "Just the facts, Ma'am" type.<br /><br />I can just see the 2 of us sitting at our spinning wheels working away like Rumplestiltskin. We need pointy hats for that and funny little legs to do our dance of rage. Can almost do that any day!!<br /><br />Julia is such a helpful and consistent blogger. Well back to my spinningAnethttps://www.blogger.com/profile/02831501899415936152noreply@blogger.comtag:blogger.com,1999:blog-8533911831400192848.post-89845867657483050722013-01-26T21:02:21.246-05:002013-01-26T21:02:21.246-05:00This is an excellent post in so many ways, Annette...This is an excellent post in so many ways, Annette. I'm looking forward to reading the attached posts and papers. The conclusion:<br />"Blogging ... created opportunities for making meaning and gaining insights from the experience of illness, which nurtured a sense of purpose and furthered their understanding of their illness."<br />has certainly been my experience of blogging. It really is a way of turning straw into gold. What use is all the suffering I've had if I can't transform it into something that might help others and perhaps, especially, myself?<br /><br />When it comes to learning how to write, Stephen King's 'On Writing' is one of "the" books to read. I read a lot of writing books in my twenties and if I came to recommend my favourite now, it would be 'On Writing' and Anne Lamott's 'Bird by Bird'. King's book brings such refreshing and practical humour to the craft, I think it would be impossible not to like, but I suppose all those people who say his work is not 'real' writing would disagree!<br /><br />Julia from Reasonably Well is a retired RN as I remember from either her website or somewhere else. I agree that it's one of the absolute best sites about Sjogren's from the patient's perspective. I have found many answers to some of my most puzzling symptoms there. It really helped me to normalize what was happening. I think that's a worthy goal for any blog.<br /><br />Thanks for the good read!<br /><br />Blessings,<br />JaneJanehttps://www.blogger.com/profile/04880509595317100208noreply@blogger.com