tag:blogger.com,1999:blog-8533911831400192848.post7399794095061213433..comments2023-10-20T06:48:05.682-04:00Comments on Here's Your Gold Watch - Rheutired: The Tremendous Effort To Look NormalAnethttp://www.blogger.com/profile/02831501899415936152noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-8533911831400192848.post-27608372240521585992014-09-03T19:00:57.380-04:002014-09-03T19:00:57.380-04:00Thanks for your continued support Annette. And tha...Thanks for your continued support Annette. And thanks for helping by joining the Super Spoonie Story Swap and to build a Spoonie Blog Network. I hope it will be another valuable resource for us folks taking it hour by hour. http://elephantintherheum.blogspot.ca/p/super-spoonie-story-swap.htmlElephant in the Rheumhttps://www.blogger.com/profile/13793760931959995382noreply@blogger.comtag:blogger.com,1999:blog-8533911831400192848.post-69792197465886042392014-08-19T04:06:43.085-04:002014-08-19T04:06:43.085-04:00I was just about to say Carolyn Thomas wrote on th...I was just about to say Carolyn Thomas wrote on the same theme and then I see her comment here :-) This whole concept is quite new to me, but I am grateful to you both for wakening me up to it. For many years my advocacy has been focused firmly on cancer; it's only in the last year that I've looked around and started to learn from other advocates like yourself and Carolyn. I am looking forward to expanding my horizons more at Medicine X. Marie Ennis https://www.blogger.com/profile/10977130661613864057noreply@blogger.comtag:blogger.com,1999:blog-8533911831400192848.post-44741618362126625992013-06-12T08:48:00.538-04:002013-06-12T08:48:00.538-04:00That was a one time experience so far and I wish t...That was a one time experience so far and I wish there were more that were so efficient. For the fracture clinic at my hospital you need to pack a lunch. It is always overful. <br />Such a contrast to the hand clinic which is efficient, on time and calm.Anethttps://www.blogger.com/profile/02831501899415936152noreply@blogger.comtag:blogger.com,1999:blog-8533911831400192848.post-60548260678241907402013-06-09T12:07:56.309-04:002013-06-09T12:07:56.309-04:00Thanks for the link, Annette.
That hospital you w...Thanks for the link, Annette.<br /><br />That hospital you went to deserves an award for patient-centred care. It reminds me of my trip to the Mayo Clinic. I was impressed about the efficiency of the set-up there. <br /><br />I am certain that change will occur, spear-headed by forward-thinkers such as Dr. Montori and The Stanton Territorial Hospital in partnership with the Can. Health Services Research Foundation.Marianna Paulsonhttp://www.rheumfuloftips.wordpress.comnoreply@blogger.comtag:blogger.com,1999:blog-8533911831400192848.post-30031190869994055482013-06-08T19:42:27.950-04:002013-06-08T19:42:27.950-04:00Lucky that I got mine posted before I saw your tho...Lucky that I got mine posted before I saw your thoughtful and thorough look at the topic. The post was going to go in another direction completely but did not cooperate.<br /><br />I got a tweet from Dr. Montori asking for ideas to "turn this mutual identification and language into a movement" You're doing a lot towards that. <br />The idea of more interdisciplinary cooperation really appeals to me. Everyone seems to try to load all of these initiatives onto the doctor's plates and as they point out, this is not the way they are reimbursed in most cases. Anethttps://www.blogger.com/profile/02831501899415936152noreply@blogger.comtag:blogger.com,1999:blog-8533911831400192848.post-60137046521422531452013-06-08T17:14:53.568-04:002013-06-08T17:14:53.568-04:00Hello Annette,
Great minds think alike - just toda...Hello Annette,<br />Great minds think alike - just today I too posted a new article that basically encapsulates Dr. Montori's theme on the chronically ill, who "look normal because of their tremendous effort to look normal" - called "To Just Be A Person, And Not a Patient Anymore" - http://myheartsisters.org/2013/06/08/i-dont-want-to-be-ill/ <br /><br />Thanks especially for including a link here to Dr. Montori's closing presentation at MedCity Engage. His message is so important - but I'm concerned that even the patients who may benefit most from MDM may in fact be misinterpreting the message. <br /><br />For example, when I enthusiastically opened a discussion on Mininally Disruptive Medicine on Inspire.com's WomenHeart support community, I was stunned by the comments from a number of heart patients who responded. Many interpret Minimally Disruptive Medicine to mean "minimal care", arguing that it's hard enough as it is to have doctors take female heart patients seriously, and now you're wanting to encourage docs to do even LESS to help us! <br /><br />You and I clearly don't interpret MDM like this, but we should be aware of these potential obstacles (even among patients you'd think would be most likely to embrace the concept). <br /><br />I was also excited to see @afternoonnapper's Tweet hailing Dr. Montori as "a general in the Spoonie army". Brilliant and so well-deserved.<br /><br />Regards,<br />C.<br /><br /><br />Carolyn Thomashttp://myheartsisters.org/2013/06/08/i-dont-want-to-be-ill/noreply@blogger.com