Here's Your Gold Watch - Rheutired

A blog about patient engagement in healthcare, rheumatoid arthritis, and coping skills with chronic illness, along with some practical ideas and personal strategies

Monday 25 February 2019

Patients as Partners in Health Research

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When I was diagnosed with Rheumatoid Arthritis (RA) it was pre-internet, near the time the VIC 20 came out. (it had 20K capacity but only ...

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Saturday 23 February 2019

2018 Sjogren's Society of Canada National Conference

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Opportunities For Empowerment Last year's in-person National Conference took place last April, and here's a retrospective look at...

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Monday 24 September 2018

Dealing with Chronic Disease Can Get Old

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This post is partly crowd-sourced from my online support group that's been together through thick and thin, even losing a few members...

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Friday 20 July 2018

Being a Patient Advisor: One of the Drawbacks

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I t has been an illuminating time recently on social media, hearing patients and caregivers express feelings of frustration, and of being ...

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Monday 16 July 2018

Getting Involved as a Patient Advisor: The Hackathon Files

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In the middle of October I was a judge and patient advisor at a Hackathon put on by the Arthritis Society at the MaRS Discovery District in ...

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About Me

Anet: I've had rheumatoid arthritis for 30 years. I spent the last 20 working full time in market research. Now health advocacy and the quality of life with chronic illness are major interests. It's great to have time to blog and tweet and go out for lunch.

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