Showing posts with label MedX. Show all posts
Showing posts with label MedX. Show all posts
Tuesday, 15 September 2015

Looking Forward to MedX

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Last year I was an ePatient Delegate to MedX; once it was over I was able to call myself an ePatient Scholar.  Being there was an experien...
Friday, 1 May 2015

Patients Included: A Charter for Conferences

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The Patients Included Charter for Conferences has just been published today, May 1. This post describes some of my feelings about attending...
Saturday, 22 November 2014

Traveling With an Invisible Disability

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Traveling with a  mostly invisible illness is difficult. It can make you sound neurotic when your concerns about problems seem trivial to o...
Tuesday, 14 October 2014

Chronic Diseases: More the Same Than Different

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In September I wrote a guest post called "A Day In The Life" that appeared on HealthiVibe . Jeri Burtchell is doing a series of pa...
Monday, 4 August 2014

Medicine X is Close and has a Global Access Program

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Alan Brewington (@abrewi13010), an ePatient Scholar, issued a suggestion to ePatients attending MedX this year. I took it as a challenge to ...
Monday, 3 March 2014

Blogging and Connections

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When I started to blog I  g radually  realized that I had good practical tips learned through being a patient  with chronic illness for  ove...
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Wednesday, 5 February 2014

A Day In the Life

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The members of the support group I've been in for ten years were thinking about Rheumatoid Awareness Day which occurred this week. In t...
Saturday, 5 October 2013

Inspiration and Unmet Needs

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This past weekend as I watched the MedX livestream and the associated Twitter timeline;  I was saving tweets that impressed me . When a pa...
Saturday, 28 September 2013

Informed Consent

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It was great to see a conversation about informed consent taking place at Stanford's MedX Conference on September 18. I have  put these ...