Here's Your Gold Watch - Rheutired

A blog about patient engagement in healthcare, rheumatoid arthritis, and coping skills with chronic illness, along with some practical ideas and personal strategies

Showing posts with label patient voice. Show all posts

Showing posts with label patient voice. Show all posts

Friday, 20 July 2018

Being a Patient Advisor: One of the Drawbacks

I t has been an illuminating time recently on social media, hearing patients and caregivers express feelings of frustration, and of being ...

Sunday, 24 April 2016

Patient Groups - Hard Work and Lots of Questions

Last week I attended the CADTH symposium in Ottawa as a member of the Sjogren's Society of Canada. You might wonder exactly what CAD...

Thursday, 20 August 2015

The Authentic Patient Voice

The language of patient engagement is starting to concern me. On Twitter # PatientsIncluded is the only patient hashtag that has not been ...

Thursday, 27 November 2014

Coping Through Adapting: Not Quite the Same as Doing Well

A few years ago my rheumatologist used a computerized patient reporting system on a trial basis. Patients were asked to fill in a detailed ...

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About Me

Anet: I've had rheumatoid arthritis for 30 years. I spent the last 20 working full time in market research. Now health advocacy and the quality of life with chronic illness are major interests. It's great to have time to blog and tweet and go out for lunch.

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