Saturday, 3 November 2012
Managing Big Problems in Chronic Disease
With chronic disease some days all of your problems look like big ones, especially in the fall and winter when it is dark and gloomy, cold and wet. I find that large vegetables cheer me up quite effectively but that is not a life solution.
This morning I read a blog by Carolyn Thomas at The Ethical Nag http://ethicalnag.org/2012/11/01/multiple-chronic-conditions/
She talks about what we have to do to manage our chronic disease well and lists the four main areas we have to juggle. I know from experience that the hard part is maintaining "simultaneous control" over all aspects of our conditions in the long term.
I felt a lot better to hear that I was not the only one who is challenged in one area or another and the next reading I do might be about emotional eating. It's hard to say your diet is good with all the edges filled in with tiny chocolate bars, dry roasted peanuts and little bags of chips and cheetos. Maybe more sushi is in order.
There is so much information and advice available everywhere we look. I have been developing a list of links and have almost filled up my new free program called Evernote - maybe not filled but it refused to add new links in my main document for a while. (Update: it's back to normal now)
Online patient communities are a great source of support and solace. Talking to friends who totally understand what you are going through makes you feel better. They are so easy to find on Twitter and in patient groups. I can't say much about Facebook as I skipped that step.
And for my Fall Resolution: Go out and see more people. Or if that seems impossible I'll invite them here for pizza or tea and cookies. Maybe a cake of my dreams.
You see that's the problem of the moment - eating. Looks like Carolyn has a post for that too.